Speak Your Piece! - Cloud Nyne Design

Speak Your Piece! 05/22/2008

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Thank you once again for visiting us at Cloud Nyne Design.

Comments

jennifer miller

Thu, 22 May 2008 19:48:28

I'm the first comment, yay!!! This is fabulous Shawn! I'm honored to know you and appreciate all you've done both for CDH and for me personally--your blog comments are some of my favorite throughout our journey, thank you for always lifting me up!

Jessica Singletary

Fri, 23 May 2008 05:53:07

This is just wonderful! You've out done yourself again.

Thank you so much for all you do for CDH families and for me. I am honored to know you and have you in my life.

Together we will make a difference!

Lauren

Sun, 25 May 2008 13:15:17

Oh Shawn,

You are such a dedicated, warm and wonderful person. I feel so honoured to call you a friend - and agree with Jenn on the blog comments! You have done SO much to honour all of our children. As usual, I don't even know how to begin to thank you for your caring spirit, and the awareness and difference you are making in the lives of SO many people. It's so inspiring to know that there are souls like yours here on earth.

Love you! Lauren

Carole

Tue, 10 Jun 2008 10:44:35

Shawn,
I've just cruised over here now. Awesome, awesome job. You have done so much to honor our children. It is one of life's great priviledges to know you!
~Carole

Cristin

Wed, 11 Jun 2008 07:32:08

Love the new site. Love how you honor CDH angels and children.

Alaina

Tue, 19 Aug 2008 17:35:04

Hi :)
I'm Alaina and i'm seventeen years old.
I was, too, born with diaphragmatic hernia. Surprisingly, I had the Bochdalek one which is more common in boys. Haha.
I was very lucky, though, to not have any serious long-term effects.
I think that it's great what you're doing.
:)

Kathy Taborelli

Wed, 29 Oct 2008 16:15:48

Hi,
My name is Kathy and I am 35 weeks pregnant with a baby girl we named Sydney. She was diagnosed at 20 weeks with CDH. They are not sure if it is a right sided or bilateral. She does have a very small left lung visable. We are going to be taken care at childrens hospital of philadelphia. I think your videos are amazing. Thank you for spreading awarness my hope is that one day no one will have to go through this .
Kathy

julie Leonard

Wed, 28 Jan 2009 08:10:31

Hello,

My name is Julie and my son Kiernanwas diagnosed with Left sided CDH at 32 weeks gestation. He was born 4 weeks later and has his repair done at 4 days old. We went from not knowing what would happen to now having a healthy surviving little fighter. my son also has a chromosomal abnormality on top of the CDH. Thank you for doing things like this to raise awareness. It is greatly needed. Especially since the hospital my Kiernan was born at sees 8-10 CDH babies a year and as my Kiernan was healing another CDH baby was coming in. Thank you so so much. My kiernan thanks you to
~Julie

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